EOS CONNECTION PATIENT EDUCATION CONFERENCE ON EOSINOPHIL-ASSOCIATED DISEASES
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EOS CONNECTION PATIENT EDUCATION CONFERENCE ON EOSINOPHIL-ASSOCIATED DISEASES
Registration includes access to a pre-conference webinar that will be hosted in the days leading up to the event as well as an All-Virtual Research Round Up that we’ll host July 16-18. Additional details will soon be posted about these.
Registration options
Onsite conference: $50 per person Virtual attendees: $0 per person
APFED will provide five (5) meals for onsite attendees. On Friday, June 27, meals will includes breakfast, lunch, and dinner, and on Saturday, June 28, meals will include breakfast and lunch. All meals will be served buffet style and include allergy-friendly options, with ingredients labeled.
This hybrid event will feature live events at the DoubleTree by Hilton Raleigh-Durham Airport at Research Triangle Park, with select sessions streamed online for virtual participants. We hope to see you there!
Everyone who registers for the conference can:
Meet and network with patients, families, and other community members
Learn about eosinophil-associated diseases and practical strategies from experts
Explore new research in our virtual Poster Hall
Learn about resources, products, and services in the virtual Exhibit Hall
Access session recordings on-demand for six months following the live events
APFED will award up to 10 travel grants of up to $1,000 USD each on a first-come, first-served basis. The grants may be applied to travel expenses to attend APFED’s annual patient education conference onsite in Raleigh-Durham, NC. Recipients will also have conference registration fees.
APFED’s annual patient education conference will feature a virtual poster hall to learn about the latest research on eosinophil-associated diseases. Researchers are invited to submit an abstract by May 9, 2025.
Pre-Conference Webinar
What Does ‘Better’ Really Mean in EoE
The recording will be available soon.
We held a one-hour live webinar featuring Laura Bach, DO, a gastroenterologist at Duke University. Dr. Bach shared practical insights on how improvement in EoE is measured, what progress can feel and look like, how to stay on top of treatment goals, and how to partner effectively with your care team. It was a great opportunity to gain clarity and confidence ahead of our annual patient-education conference, Eos Connection 2025!
Date: Thursday, June 12
Time: 12:00 p.m. ET
We thank our Eos Connection 2025 Presenting Education Partners for independently supporting this webinar: Sanofi and Regeneron.
Access this webinar by registering as an onsite or free virtual attendee for Eos Connection 2025.
Agenda
All session times are in Eastern Time. The agenda is subject to change.
Variability in time to surveillance endoscopy for eosinophilic esophagitis and impact on treatment outcomes
There is substantial variability in the time to first surveillance endoscopy in EoE patients who achieve disease remission, and this variability is not explained by most clinical and endoscopic features, except for dilation size achieved.
While surveillance timing was not associated with substantial differences in EoE outcomes, there was a suggestion that an interval >2 years may lead to decreased histologic response or more symptoms, though more data are needed to confirm this and explain the observed variability.
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Development of an Allergen-Specific Food Survey in Eosinophilic Gastrointestinal Disease: Food Elimination and Allergen Screening Tool (FEAST)
FEAST is the first dietary assessment tool designed to quantify trigger food consumption specific to eosinophilic patients. With further validation studies, this tool may be employed by clinicians and dietitians to assess a patient’s dietary adherence and tailor personalized treatment plans. Additionally, this screener can be leveraged in clinical research to gain insights into a patient's intake.
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Dupilumab Improves Inflammation and Signs of Eosinophilic Esophagitis in Patients Aged 1 Year and Older
Over 52 weeks, dupilumab reduced inflammation and improved signs of EoE, as measured by EREFS, in children, adolescents, and adults
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Long-Term Dupilumab Maintained Improvements in Children with Eosinophilic Esophagitis: Results from the Extension of the EoE KIDS Study
Dupilumab treatment led to maintained improvements in children with EoE up to Week 100 and had a consistent, acceptable safety profile.
-
Barriers to gastroenterology referrals in eosinophilic esophagitis (EoE)
Among non-GI providers, non-response to proton pump inhibitor is the most common reason to seek GI referral, suggesting that PPIs are a typical first-line approach.
While many systems-levels barriers to GI referrals include access to specialists, insurance, and financial costs, nearly half of non-GI clinicians hesitate to refer to gastroenterologists when symptoms are well managed, vague, or transient.
As symptoms alone are inadequate to guide treatment and determine disease response, reliance on symptoms to determine GI referrals may result in missing untreated disease.
These findings underscore the need for continued awareness of subtle symptoms, education on treatment goals, and need for multidisciplinary collaboration to optimize referral pathways.
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Patient perspectives on diagnostic challenges in eosinophilic esophagitis (EoE)
EoE patients experience significant delays in diagnosis, underscoring the need for improved diagnostic pathways. Individuals with EoE experience several challenges in seeking specialty care including access and insurance, highlighting need for increased awareness for EoE among primary care providers to ensure accurate diagnosis and prompt treatment
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Seeking care for eosinophilic esophagitis (EoE): Patients see multiple providers for EoE
Multidisciplinary care is common in EoE management. However, only 62% of patients report seeing an allergist, and 15% report seeing a dietitian. Given dietary treatment approaches and psychosocial toll of EoE, establishing and improving upon models for multidisciplinary EoE care among specialists may reduce redundancy and improve outcomes.
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Treatment adherence in eosinophilic esophagitis (EoE): Patient, caregiver, and clinician perspectives
Adherence is perceived as a significant challenge to EoE management. Nearly 80% of patients have experience with dietary therapy, yet dietary management is reported as the biggest challenge of EoE management for patients and a major challenge for providers guiding management. Identifying adherence barriers and solutions is crucial for improving outcomes.
June 12, 2025 12:00 PM to 01:00 PM
What Does 'Better' Really Mean in EoE?
To help patients and families understand how improvement in Eosinophilic Esophagitis (EoE) is measured, what progress can feel and look like, how to stay on top of treatment goals and how to partner effectively with their care teams.
Laura Bach
Duke University
Laura Bach
Duke University
Laura Bach, D.O. is an Assistant Professor of Medicine in the Division of Gastroenterology and Hepatology at Duke University in Durham, NC. After graduating from Midwestern University-Chicago College of Osteopathic Medicine, she completed residency in Internal Medicine at Advocate Lutheran General in Park Ridge, IL. She completed specialty training in Gastroenterology and Hepatology at the University of Arizona in Tucson, AZ, where she served as a clinical teaching faculty at the University of Arizona for two years. She then pursued a subspecialty fellowship at Mayo Clinic in Scottsdale, AZ in Advanced Esophageal Diseases. She is a member of the Esophageal Diseases faculty at Duke, providing care for patients with a variety of esophageal disorders.
June 26, 2025 02:00 PM to 05:00 PM
Check-in
June 26, 2025 04:00 PM to 05:30 PM
Eos & Everyone: Welcome Mixer
Sponsored by Ajinomoto Cambrooke
Join us for light refreshments and get to know other attendees before the sessions kick off. Cash bar available.
June 26, 2025 08:00 PM to 09:30 PM
Adult Meet Up (Pay your own tab)
Piney Point Grill Bar (Hotel Lobby)
June 26, 2025 08:00 PM to 09:30 PM
Teen Mixer
June 27, 2025 08:00 AM to 09:00 AM
Breakfast + Exhibits
June 27, 2025 09:00 AM to 12:00 PM
Session 1 (June 27)
Live + streaming
Prevalence of EGID and Health Care Utilization
Learn how common EGIDs are and how these conditions can affect health care needs and services.
Elizabeth Jensen, MPH, PhD Epidemiologist
Wake Forest University School of Medicine
Eosinophilic Esophagitis (EoE): The Latest Guidelines Explained
Learn the latest updates in the diagnosis and management guidelines for Eosinophilic Esophagitis (EoE), and help patients and families understand will learn how these changes may impact their care and treatment options.
Craig. C. Reed, MD, MSCR
Gastroenterologist
University of North Carolina School of Medicine
Panel Q&A
Break
EoE Treatment Options and Advancements in Clinical Trials
Learn current treatment options for eosinophilic esophagitis (EoE) and explore the latest advancements from clinical trials, including novel therapies and evolving management strategies.
David A. Leiman, MD, MSHP
Gastroenterologist
Duke Health
Non-EoE EGID Treatment Options and Advancements
Learn current and emerging treatment options for non-EoE EGIDs (eosinophilic gastritis, colitis), and clinical trials to better navigate care decisions and discuss personalized treatment plans with your healthcare team.
Evan S. Dellon, MD, MPH
Academic Gastroenterologist
UNC School of Medicine
Panel Q&A
APFED Remarks and Housekeeping
June 27, 2025 12:00 PM to 01:00 PM
Lunch
June 27, 2025 01:00 PM to 03:30 PM
Session 2 (June 27)
Live + streaming
Sticking with the Plan: Treatment Adherence and EGIDs and Tips for Staying on Track
To help patients and families understand the importance of treatment adherence in managing eosinophilic gastrointestinal diseases (EGIDs), explore common challenges, and share strategies to support long-term success with diet and medication plans.
Alexander Reddy, MD
Gastroenterologist
Duke Health
Citizen Scientists: Powering Research Through the EGID Partners Registry
Learn how patients and caregivers are driving discovery in eosinophilic gastrointestinal diseases through the EGID Partners Patient Registry. Panelists will explain how the registry is being used to shape research and improve care. Hear why people participate, what to expect if you join, and how your experience can help answer key questions about EGID.
Evan S. Dellon, MD, MPH
Academic Gastroenterologist
UNC School of Medicine
Elizabeth Jensen, MPH, PhD
Epidemiologist
Wake Forest University School of Medicine
Medication Matters: How Clinical Pharmacist Practitioners Support Your Eos Care
This session will help participants understand how clinical pharmacist practitioners support those with eosinophilic GI disorders and how pharmacists help manage medications, monitor for side effects, assist with prior authorizations, and provide education to ensure safe and effective treatment.
Francesca Coppola, PharmD, CPP
Clinical Pharmacist
Duke Pharmacy
Panel Q&A
Understanding and Navigating Food Impactions + Q&A
This session is sponsored by Sanofi and Regeneron.
This session will help participants understand what food impaction is, why it happens, how to recognize the signs, and what steps to take for treatment and prevention. Gain practical knowledge to navigate impactions safely and confidently.
Trevor Barlowe, MD, MSCR
Research Fellow
University of North Carolina at Chapel Hill
Pregnancy and Reproductive Health Outcomes for EGID Patients + Q&A
This session will provide an overview of what is known about pregnancy and reproductive health in individuals with EGIDs. Participants will learn about the potential impacts of EGIDs and treatments on fertility, pregnancy outcomes, and maternal and fetal health, as well as considerations for planning a healthy pregnancy and postpartum care.
Elizabeth Jensen, MPH, PhD
Epidemiologist
Wake Forest University School of Medicine
Alexander Reddy
Alexander Reddy
Elizabeth Jensen
Elizabeth Jensen
Evan Dellon
Evan Dellon
Francesca Coppola
Francesca Coppola
Trevor Barlowe
Trevor Barlowe
June 27, 2025 03:30 PM to 04:15 PM
Navigating Eos: Virtual Breakout Rooms
Small group virtual discussions.
June 27, 2025 05:30 PM to 07:30 PM
Networking Dinner
Music, activities for kids, allergy-friendly buffet. Come say hello to eos-community member Brady Allen, Quarterback for the Louisville Cardinals!
Brady Allen
Louisville Cardinals
Brady Allen
Louisville Cardinals
Brady Allen is a collegiate quarterback for the University of Louisville and a member of APFED community, having been recently diagnosed with eosinophilic esophagitis and eosinophilic gastritis. Originally from Fort Branch, Indiana, Brady was named Indiana Mr. Football and is one of the most accomplished high school quarterbacks in state history, holding records for career completions and touchdowns. A 4-star recruit and consensus Top 10 quarterback in the Class of 2022, Allen earned the prestigious title of Indiana Mr. Football, recognizing him as the state’s top high school player. He holds Indiana high school football records for career completions and touchdowns, and ranks second all-time in career passing yards in the state’s history. Brady joins us at Eos Connection 2025 to connect with patients and families and share his personal insights as someone who understands the strength it takes to overcome adversity—on and off the field.
June 28, 2025 08:00 AM to 09:00 AM
Breakfast + Exhibits
June 28, 2025 09:00 AM to 12:00 PM
Session 3 (July 28)
Live + streaming
Welcome + Opening Remarks
Patient Voice: Impact of EGID
Brady Allen Louisville Cardinals
Food Allergy Immunotherapy and EoE: Can They Work Together?
To help patients and families understand the role of immunotherapy in treating food allergies, explore the potential risks and benefits in the context of Eosinophilic Esophagitis (EoE), and provide guidance on making informed decisions about treatment options.
Edwin H. Kim, MD, MS
Pediatric Allergist/Immunologist
University of North Carolina School of Medicine
Unpacking the Role of Mast Cells in Eosinophilic GI Disorders
To help patients and families understand the role of mast cells in eosinophilic gastrointestinal diseases (EGIDs), how they contribute to symptoms, and what this means for diagnosis and treatment approaches.
Onyinye I. Iweala, MD, PhD, FAAAAI
Allergist/Immunologist
University of North Carolina at Chapel Hill
Q&A
Break
Patient Voice: Pros and Cons of Dietary Treatment
Food as Medicine: The Role of Diet in Allergic Disease
Learn how food and nutrition can impact allergies, explore the latest research on how diet may help manage inflammation, and discover practical tips to support your health through what you eat.
Raquel Durban, MS, RD, LDN
Registered Dietitian
Raquel Durban, LLC
Starting Strong: A Practical Guide to Elimination Diets for Eosinophilic Disorders
Learn the basics of starting an elimination diet for eosinophilic disorders. Attendees will learn the goals of dietary therapy, common approaches, tips for planning meals, and strategies to maintain nutritional balance while avoiding trigger foods. The session will also address practical challenges and provide resources to support success.
M. Angie Almond, MEd, RD, LDN, FAND
Registered Dietitian
Atrium Health Wake Forest Baptist
Wake Forest University School of Medicine
Q&A
APFED Remarks and Housekeeping
Angie Almond
Angie Almond
Brady Allen
Brady Allen
Edwin Kim
Edwin Kim
Onyinye Iweala
Onyinye Iweala
Raquel Durban
Raquel Durban
June 28, 2025 12:00 PM to 01:00 PM
Lunch
Description goes here
June 28, 2025 01:00 PM to 02:30 PM
Session 4 (June 28)
Live + streaming
Patient Panel
APFED Mission Update
Mary Jo Strobel
APFED
Closing Remarks
Mary Jo Strobel
Mary Jo Strobel
June 28, 2025 02:30 PM to 03:15 PM
Navigating Eos: Virtual Breakout Rooms
Small group virtual discussions
Agenda
All session times are in Eastern Time. The agenda is subject to change.
To help patients and families understand how improvement in Eosinophilic Esophagitis (EoE) is measured, what progress can feel and look like, how to stay on top of treatment goals and how to partner effectively with their care teams.
Laura Bach Duke University
Laura Bach
Laura Bach, D.O. is an Assistant Professor of Medicine in the Division of Gastroenterology and Hepatology at Duke University in Durham, NC. After graduating from Midwestern University-Chicago College of Osteopathic Medicine, she completed residency in Internal Medicine at Advocate Lutheran General in Park Ridge, IL. She completed specialty training in Gastroenterology and Hepatology at the University of Arizona in Tucson, AZ, where she served as a clinical teaching faculty at the University of Arizona for two years. She then pursued a subspecialty fellowship at Mayo Clinic in Scottsdale, AZ in Advanced Esophageal Diseases. She is a member of the Esophageal Diseases faculty at Duke, providing care for patients with a variety of esophageal disorders.
06/26/2025 02:00 pm to 05:00 pm
Check-in
06/26/2025 04:00 pm to 05:30 pm
Eos & Everyone: Welcome Mixer
Sponsored by Ajinomoto Cambrooke
Join us for light refreshments and get to know other attendees before the sessions kick off. Cash bar available.
06/26/2025 08:00 pm to 09:30 pm
Adult Meet Up (Pay your own tab)
Piney Point Grill Bar (Hotel Lobby)
06/26/2025 08:00 pm to 09:30 pm
Teen Mixer
06/27/2025 08:00 am to 09:00 am
Breakfast + Exhibits
06/27/2025 09:00 am to 12:00 pm
Session 1 (June 27)
Live + streaming
Prevalence of EGID and Health Care Utilization
Learn how common EGIDs are and how these conditions can affect health care needs and services.
Elizabeth Jensen, MPH, PhD Epidemiologist
Wake Forest University School of Medicine
Eosinophilic Esophagitis (EoE): The Latest Guidelines Explained
Learn the latest updates in the diagnosis and management guidelines for Eosinophilic Esophagitis (EoE), and help patients and families understand will learn how these changes may impact their care and treatment options.
Craig. C. Reed, MD, MSCR
Gastroenterologist
University of North Carolina School of Medicine
Panel Q&A
Break
EoE Treatment Options and Advancements in Clinical Trials
Learn current treatment options for eosinophilic esophagitis (EoE) and explore the latest advancements from clinical trials, including novel therapies and evolving management strategies.
David A. Leiman, MD, MSHP
Gastroenterologist
Duke Health
Non-EoE EGID Treatment Options and Advancements
Learn current and emerging treatment options for non-EoE EGIDs (eosinophilic gastritis, colitis), and clinical trials to better navigate care decisions and discuss personalized treatment plans with your healthcare team.
Evan S. Dellon, MD, MPH
Academic Gastroenterologist
UNC School of Medicine
Panel Q&A
APFED Remarks and Housekeeping
06/27/2025 12:00 pm to 01:00 pm
Lunch
06/27/2025 01:00 pm to 03:30 pm
Session 2 (June 27)
Live + streaming
Sticking with the Plan: Treatment Adherence and EGIDs and Tips for Staying on Track
To help patients and families understand the importance of treatment adherence in managing eosinophilic gastrointestinal diseases (EGIDs), explore common challenges, and share strategies to support long-term success with diet and medication plans.
Alexander Reddy, MD
Gastroenterologist
Duke Health
Citizen Scientists: Powering Research Through the EGID Partners Registry
Learn how patients and caregivers are driving discovery in eosinophilic gastrointestinal diseases through the EGID Partners Patient Registry. Panelists will explain how the registry is being used to shape research and improve care. Hear why people participate, what to expect if you join, and how your experience can help answer key questions about EGID.
Evan S. Dellon, MD, MPH
Academic Gastroenterologist
UNC School of Medicine
Elizabeth Jensen, MPH, PhD
Epidemiologist
Wake Forest University School of Medicine
Medication Matters: How Clinical Pharmacist Practitioners Support Your Eos Care
This session will help participants understand how clinical pharmacist practitioners support those with eosinophilic GI disorders and how pharmacists help manage medications, monitor for side effects, assist with prior authorizations, and provide education to ensure safe and effective treatment.
Francesca Coppola, PharmD, CPP
Clinical Pharmacist
Duke Pharmacy
Panel Q&A
Understanding and Navigating Food Impactions + Q&A
This session is sponsored by Sanofi and Regeneron.
This session will help participants understand what food impaction is, why it happens, how to recognize the signs, and what steps to take for treatment and prevention. Gain practical knowledge to navigate impactions safely and confidently.
Trevor Barlowe, MD, MSCR
Research Fellow
University of North Carolina at Chapel Hill
Pregnancy and Reproductive Health Outcomes for EGID Patients + Q&A
This session will provide an overview of what is known about pregnancy and reproductive health in individuals with EGIDs. Participants will learn about the potential impacts of EGIDs and treatments on fertility, pregnancy outcomes, and maternal and fetal health, as well as considerations for planning a healthy pregnancy and postpartum care.
Elizabeth Jensen, MPH, PhD
Epidemiologist
Wake Forest University School of Medicine
Alexander Reddy
Alexander Reddy
Elizabeth Jensen
Elizabeth Jensen
Evan Dellon
Evan Dellon
Francesca Coppola
Francesca Coppola
Trevor Barlowe
Trevor Barlowe
06/27/2025 03:30 pm to 04:15 pm
Navigating Eos: Virtual Breakout Rooms
Small group virtual discussions.
06/27/2025 05:30 pm to 07:30 pm
Networking Dinner
Music, activities for kids, allergy-friendly buffet. Come say hello to eos-community member Brady Allen, Quarterback for the Louisville Cardinals!
Brady Allen Louisville Cardinals
Brady Allen
Brady Allen is a collegiate quarterback for the University of Louisville and a member of APFED community, having been recently diagnosed with eosinophilic esophagitis and eosinophilic gastritis. Originally from Fort Branch, Indiana, Brady was named Indiana Mr. Football and is one of the most accomplished high school quarterbacks in state history, holding records for career completions and touchdowns. A 4-star recruit and consensus Top 10 quarterback in the Class of 2022, Allen earned the prestigious title of Indiana Mr. Football, recognizing him as the state’s top high school player. He holds Indiana high school football records for career completions and touchdowns, and ranks second all-time in career passing yards in the state’s history. Brady joins us at Eos Connection 2025 to connect with patients and families and share his personal insights as someone who understands the strength it takes to overcome adversity—on and off the field.
06/28/2025 08:00 am to 09:00 am
Breakfast + Exhibits
06/28/2025 09:00 am to 12:00 pm
Session 3 (July 28)
Live + streaming
Welcome + Opening Remarks
Patient Voice: Impact of EGID
Brady Allen Louisville Cardinals
Food Allergy Immunotherapy and EoE: Can They Work Together?
To help patients and families understand the role of immunotherapy in treating food allergies, explore the potential risks and benefits in the context of Eosinophilic Esophagitis (EoE), and provide guidance on making informed decisions about treatment options.
Edwin H. Kim, MD, MS
Pediatric Allergist/Immunologist
University of North Carolina School of Medicine
Unpacking the Role of Mast Cells in Eosinophilic GI Disorders
To help patients and families understand the role of mast cells in eosinophilic gastrointestinal diseases (EGIDs), how they contribute to symptoms, and what this means for diagnosis and treatment approaches.
Onyinye I. Iweala, MD, PhD, FAAAAI
Allergist/Immunologist
University of North Carolina at Chapel Hill
Q&A
Break
Patient Voice: Pros and Cons of Dietary Treatment
Food as Medicine: The Role of Diet in Allergic Disease
Learn how food and nutrition can impact allergies, explore the latest research on how diet may help manage inflammation, and discover practical tips to support your health through what you eat.
Raquel Durban, MS, RD, LDN
Registered Dietitian
Raquel Durban, LLC
Starting Strong: A Practical Guide to Elimination Diets for Eosinophilic Disorders
Learn the basics of starting an elimination diet for eosinophilic disorders. Attendees will learn the goals of dietary therapy, common approaches, tips for planning meals, and strategies to maintain nutritional balance while avoiding trigger foods. The session will also address practical challenges and provide resources to support success.
M. Angie Almond, MEd, RD, LDN, FAND
Registered Dietitian
Atrium Health Wake Forest Baptist
Wake Forest University School of Medicine
Q&A
APFED Remarks and Housekeeping
Brady Allen
Brady Allen
Edwin Kim
Edwin Kim
Onyinye Iweala
Onyinye Iweala
Raquel Durban
Raquel Durban
Angie Almond
Angie Almond
06/28/2025 12:00 pm to 01:00 pm
Lunch
Description goes here
06/28/2025 02:30 pm to 03:15 pm
Navigating Eos: Virtual Breakout Rooms
Small group virtual discussions
06/28/2025 01:00 pm to 02:30 pm
Session 4 (June 28)
Live + streaming
Patient Panel
APFED Mission Update
Mary Jo Strobel
APFED
Closing Remarks
Mary Jo Strobel
Mary Jo Strobel
Youth Program
Special programming is planned for youth attending Eos Connection, including a glow-in-the-dark flag tag, a mobile arcade, and interactions with mentors who also have eosinophilic disorders.
We are seeking healthcare providers to discuss experiences, perspectives and clinical practices surrounding amino acid formulas and other speciality products on the market today, including PurAmino and PurAmino Jr.
Participants should have recent clinical experience using one or more amino acid or peptide-based formulas.
Light refreshments will be provided. $250 honoraria will be offered.
Date: Friday, June 27
Time: 3:30 - 4:30 p.m. ET
Location: DoubleTree by Hilton Raleigh-Durham Airport at Research Triangle Park
Brady Allen is a collegiate quarterback for the University of Louisville and a member of APFED community, having been recently diagnosed with eosinophilic esophagitis and eosinophilic gastritis. Originally from Fort Branch, Indiana, Brady was named Indiana Mr. Football and is one of the most accomplished high school quarterbacks in state history, holding records for career completions and touchdowns. A 4-star recruit and consensus Top 10 quarterback in the Class of 2022, Allen earned the prestigious title of Indiana Mr. Football, recognizing him as the state’s top high school player. He holds Indiana high school football records for career completions and touchdowns, and ranks second all-time in career passing yards in the state’s history. Brady joins us at Eos Connection 2025 to connect with patients and families and share his personal insights as someone who understands the strength it takes to overcome adversity—on and off the field.
Craig Reed
University of North Carolina
Dr. Reed specializes in diseases of the esophagus, and he sees patients with esophageal motility disorders, Barrett’s esophagus, eosinophilic esophagitis, and complex esophageal strictures. His clinical practice includes the endoscopic management of Barrett’s esophagus, as well as the interpretation of esophageal motility studies. Dr. Reed is involved in clinical research with a focus on eosinophilic esophagitis, as well as the instruction of pre- and post-graduate medical trainees.
David Leiman
Duke University
David Leiman, MD, MSHP, is an Associate Professor of Medicine in the Division of Gastroenterology at Duke University School of Medicine, where he serves as the Director of the Esophageal Program and Motility Lab.
His clinical practice focuses on the evaluation and management of patients with complex esophageal and swallowing disorders, including eosinophilic esophagitis.
Edwin Kim
Elizabeth Jensen
Wake Forest University School of Medicine and University of North Carolina at Chapel Hill
Dr. Jensen is a professor of epidemiology with specific expertise in reproductive, perinatal, pediatric epidemiology. Her research primarily focuses on etiologic factors in the development of pediatric, immune-mediated chronic disease, including understanding factors contributing to disparities in health outcomes. Dr. Jensen earned both her MPH and PhD from the University of North Carolina at Chapel Hill and completed a postdoctoral fellowship with the National Institute of Environmental Health Sciences (NIEHS) in biomarker-based epidemiology. In addition to her appointment in Epidemiology and Prevention at Wake Forest University School of Medicine, she holds a joint appointment in the Department of Internal Medicine and Pediatrics, and an adjunct appointment at the University of North Carolina at Chapel Hill in the Department of Medicine. She serves as the Research Director for the GI fellowship program at Wake Forest University School of Medicine. Dr. Jensen leads several on-going cohort studies, including a study leveraging administrative databases and resources in Denmark to study in utero and early life environmental exposures in interaction with genotype in the development of eosinophilic esophagitis. She also co-leads a study designed to characterize early life exposure to antibiotics through microspatial assessment of deciduous teeth in children, examining antibiotics in interaction for susceptibility genotype in development of eosinophilic esophagitis. As an investigator in the Consortium for Eosinophilic Gastrointestinal Disease Researchers (CEGIR) she co-leads a study of clinical management of food bolus impaction at the time of emergency department encounters, with a goal of identifying opportunities to improve patient care at the time of these emergency department encounters. She also has on-going projects designed to elucidate novel markers in predicting treatment response for EoE patients. Dr. Jensen also serves on the EGID Partners registry scientific advisory committee and contributes actively to the patient-directed research supported through EGID Partners.
Emily Pierce
Patient Advocate
Emily Pierce is a Division 1 cross-country athlete and nursing student at Campbell University who has lived with eosinophilic esophagitis (EoE) since age 12. Balancing school, sports, and travel, she’s learned to manage her condition while staying active and ambitious. Living away at college, Emily has continued to adapt and thrive—advocating for greater awareness of GI disorders in young athletes. Her journey has inspired her to pursue a career in nursing and use her social media platforms to support others facing similar challenges.
Evan Dellon
University of North Carolina
Evan S. Dellon, MD, MPH, is a Professor of Medicine and Adjunct Professor of Epidemiology at the University of North Carolina School of Medicine in Chapel Hill. Dr. Dellon received his undergraduate degree from Brown University and his medical degree from Johns Hopkins School of Medicine. He completed internship and residency in Internal Medicine at Massachusetts General Hospital. He performed a clinical and a research fellowship in Adult Gastroenterology at UNC, during which he also received a Masters of Public Health degree in Epidemiology from the UNC School of Public Health. Dr. Dellon is currently the Director of the UNC Center for Esophageal Diseases and Swallowing (CEDAS) and has served as an Associate Editor for Clinical Gastroenterology and Hepatology. Dr. Dellon’s main research interest is in the epidemiology, pathogenesis, diagnosis, treatment, and outcomes of eosinophilic esophagitis (EoE) and the eosinophilic GI diseases (EGIDs). The goal of his research is to improve the lives of patients with EoE and EGIDs by learning how to better diagnose, treat, and monitor these conditions.
Francesca Coppola
Jennifer Roeder
Laura Bach
Duke University
Laura Bach, D.O. is an Assistant Professor of Medicine in the Division of Gastroenterology and Hepatology at Duke University in Durham, NC. After graduating from Midwestern University-Chicago College of Osteopathic Medicine, she completed residency in Internal Medicine at Advocate Lutheran General in Park Ridge, IL. She completed specialty training in Gastroenterology and Hepatology at the University of Arizona in Tucson, AZ, where she served as a clinical teaching faculty at the University of Arizona for two years. She then pursued a subspecialty fellowship at Mayo Clinic in Scottsdale, AZ in Advanced Esophageal Diseases. She is a member of the Esophageal Diseases faculty at Duke, providing care for patients with a variety of esophageal disorders.
Mary Jo Strobel
Onyinye Iweala
Raquel Durban
Trevor Barlowe
Wendy Book
APFED
Wendy Book, MD, has been involved in a volunteer capacity on the executive board of APFED, serving as the board’s President since 2009. She has led education, advocacy, research, and awareness efforts leading to the creation of National Eosinophil Awareness Week, NIH report language, the NIH Task Force on the Research Needs of Eosinophil-Associated Diseases (TREAD) document, insurance coverage of medical foods, and development of ICD-9-CM codes for eosinophilic gastrointestinal diseases. She assisted in development of APFED’s HOPE on the Horizon Research Grant Program which has directed more than $2.3 million to research efforts to date. Her efforts have led to collaborations with other patient advocacy groups, physicians, medical societies, and federal agencies. Her experience as a parent of a chronically ill child, and as a physician, provides a unique perspective on the patient experience and challenges involved in navigating the medical system.
Please review all applicable state and local COVID-19 travel restrictions, guidance, and resources before traveling to participate onsite at our event. APFED is closely monitoring COVID-19 protocols and may make adjustments as required by local and federal guidelines. If you experience symptoms of COVID, or feel ill, please do not attend the event and expose other attendees who may be more at risk for COVID infection.
Wear what is comfortable for you! The conference rooms may be a little cool, so you may want to bring a sweater.
Children under age 11 are not permitted in the conference ballroom where the main sessions are being held.
All children ages 4-10 must be accompanied at all times by an adult or chaperone who is at least age 15. Select activities will be available for ages 4-10 who register for the conference. Chaperones do not need to register for the conference unless they are planning to attend general sessions and/or access event meals.
Conference programming is not suitable for children under age 4.
We are planning a program with activities that are appropriate for children in middle and high school. These will be clearly listed on the final agenda.
APFED does not provide childcare services, but as a courtesy, can provide information upon request about local childcare services available.
Companions do not need to register for the conference unless they are planning to attend general sessions and/or access event meals.
The conference is open to anyone wishing to learn more about EGIDs. Healthcare providers, allied healthcare professionals, and others interested in EGIDs will find the sessions beneficial. CME/CEU credits are not offered, however, we will produce a certificate of participation, if requested.
Onsite conference registration includes five (5) meals. All meals will be served buffet-style and include allergy-friendly options, with ingredients labeled. Meals will include breakfast, lunch, and dinner on Friday and breakfast and lunch on Saturday.
If companions would like to access event meals, please register them for the conference.
Meals will be served buffet-style and include allergy-friendly options, with ingredients labeled.
APFED works with the catering staff to educate them on how to avoid cross-contact and provides recommendtions for ingredient substitution and specialty foods. We work to ensure that catering staff labels all ingredients carefully, and that buffet items are separated with designated serving utensils. Please be cautious, read all food labels, and be aware that some foods may contain ingredients that you should avoid.
To accommodate conference attendees with formula or other dietary needs, we will provide a Hospitality Suite for food storage and preparation. The suite includes a refrigerator and freezer, microwave, sink, dish soap, paper towels, and disposable tableware. This room will be staffed and open during the posted hours, Thursday-Saturday. Conference attendees can gain access to this suite outside of the posted hours. More information will be provided onsite at check-in.
Yes! Our conferences are a success thanks to the generosity of our volunteers! We often have tasks leading up to the conference, and onsite at the conference during that weekend. To add your name to our volunteer list, please contact conference@apfed.org. We may not have something to assign you right away, but we will keep your contact information handy. Please note that we cannot waive conference fees for volunteers.
A limited number of travel grants are available on a first-come, first-serve basis to eligible applicants. Learn more and apply.
If you would like to attend onsite but the registration fee poses a hardship, please email conference@apfed.org stating your need and a request for waived conference registration.
Cancellations must be received in writing mail@apfed.org by 5 p.m. ET on June 16, 2025. to receive a full refund of registration fees. After that time, no refunds will be issued. We will ship conference materials and email a link to recorded sessions to paid registrants who are unable to attend. Hotel cancellations must be made separately. Charges may be incurred if reservations are not canceled.
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Education Partners
If you are interested in sponsoring EOS Connection 2024, please contact mjstrobel@apfed.org.
Join patients, caregivers, healthcare professionals, and researchers for an inspiring and informative experience. Let’s connect, learn, and move forward together.