September

July 11-13, 2024

NO TRAVEL NEEDED

Hybrid Event

GUEST EXPERTS

Patient Education Sessions

LEARN & NETWORK

Exhibit Hall

LEARN & NETWORK

Poster Hall

Attend EOS Connection 2024

Join us for EOS Connection 2024, APFED’s annual patient education conference for eosinophil-associated diseases! The 2024 conference will be Thursday, July 11 - Saturday, July 13 in the Washington, D.C. area.

This hybrid event will include live events at the Bethesdan Hotel and select sessions will be streamed online for virtual participants. Recordings of conference sessions will be available on-demand through December 2024.

Thanks to the support of our Education Partners, we are offering travel grants.

Registration price

  • Onsite conference (age 11+): $25
    Discount codes were emailed to certain levels of APFED members. To become a member and learn about eligibility, visit apfed.org/membership.
  • Onsite children's activities (age 4-10, chaperone required): No cost
    • Kids must be registered in advance, and be accompanied by a registered adult. We cannot guarantee space for children as walk-ins.
  • Virtual attendees: No cost

If you have questions about membership discount codes, please contact conference@apfed.org.

Schedule

  • Thursday, July 11: Live events + streaming
  • Friday, July 12: Live events + streaming
  • Saturday, July 13: Virtual conference sessions + group social activity

View agenda

What to expect

Everyone who registers for the conference can:

  • Meet and network with patients, families, and other community members
  • Learn about eosinophil-associated diseases and practical strategies from experts
  • Explore new research in our virtual Poster Hall
  • Learn about resources, products, and services in the virtual Exhibit Hall
  • Access session recordings on-demand for six months following the live events

APFED members are eligible for discounted registration, dependent on membership level. To become an APFED member, please visit apfed.org/membership.

Research posters 

Researchers in academia (including students) and industry are invited to submit research posters for the virtual poster hall.

Key dates

May 24, 2024: Abstracts are due

June 7, 2024: Digital posters (PDF) and recorded presentations (MP4) are due

SPECIAL PRE-CONFERENCE WEBINAR

Is Your EoE Under Control?

July 9, 2024 at 3 PM ET

We will hold a special pre-conference webinar. Stay tuned for details.

This event is included in your conference registration.

Agenda

Join us in the Washington, D.C. area or online for our 22nd annual patient education conference. Thursday and Friday will feature a combination of live events and streaming, Saturday's conference sessions will all be virtual. On Saturday, there will be a watch party hosted onsite for attendees wishing to participate, and a group activity for attendees wishing to socialize.

Agenda

time iconJuly 10, 2024 04:00 pm

Meet and Greet / Sno Cone Social

time iconJuly 10, 2024 08:00 pm

Adult Cocktail Hour

The Bethesdan Hotel Lobby

(Your own tab)

time iconJuly 10, 2024 08:00 pm

Group Games for Teens

time iconJuly 11, 2024 08:00 am

Breakfast + Exhibits

Breakfast will be served buffet style and include allergy-friendly options, with ingredients labeled.

time iconJuly 11, 2024 08:30 am

Focus group for EoE patients and caregivers

Patients and caregivers living with EoE who are attending the event in person are invited to participate in a focus group. The purpose is to discuss EoE experiences and provide feedback on a novel pharmaceutical product that is in an early phase clinical trial. A $50 gift card will be offered to participants. To indicate your interest in participating, please complete this form: https://apfed.org/focus-groups/

time iconJuly 11, 2024 09:45 am

Session 1 (July 11)

speaker headshot

Mary Jo Strobel
APFED

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Wendy Book, MD
APFED

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Matthew Kowalik, MD
U.S. Food and Drug Administration

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Ryan Piansky
Patient Advocate

Welcome (Mary Jo Strobel, APFED)

Life with EoE: Findings from a U.S. Survey (Mary Jo Strobel, APFED)

Patient Voice & Needs: EGIDs

FDA Approaches to Eosinophil Disease (Matthew Kowalik, MD)

APFED Remarks & Housekeeping (Wendy Book, MD, APFED)

Live + Streaming

time iconJuly 11, 2024 11:45 am

Break

time iconJuly 11, 2024 12:00 pm

Lunch Buffet Opens (July 11)

time iconJuly 11, 2024 12:30 pm

Lunch & Learn Session (July 11)

speaker headshot

Ruchi Gupta, MD, MPH
Northwestern Medicine

Exploring the Intersections of EoE and Food Allergy: Understanding Differences, Similarities, and Overlaps

Session supported by Sanofi and Regeneron.

Lunch will be served buffet style and include allergy-friendly options, with ingredients labeled.

Live + Streaming

time iconJuly 11, 2024 01:45 pm

Making Our Voices Count: Grassroots Advocacy

speaker headshot

Megan Gordon Don
MGD Strategies

Join this special workshop to learn about how grassroot engagement makes an impact, how our community can act with one voice to improve access to care and treatment, how to effectively engage with elected officials, and tools that are available to help with efforts.

Onsite event


time iconJuly 11, 2024 05:30 pm

Networking Reception & Dinner

Dinner will be served buffet style and include allergy-friendly options, with ingredients labeled.

Activities for teens and kids are planned throughout the day. See this flyer.

time iconJuly 11, 2024 06:00 pm

Movie Night: Kids

time iconJuly 11, 2024 07:30 pm

Pool Party: Teens

Hotel Pool: Rooftop
time iconJuly 12, 2024 07:30 am

Breakfast + Exhibits

Breakfast will be served buffet style and include allergy-friendly options, with ingredients labeled.

time iconJuly 12, 2024 08:00 am

Session 1 (July 12)

speaker headshot

Dominique Pichard, MD, MS
NCATS

speaker headshot

Jonathan Spergel, MD, PhD
Children's Hospital of Philadelphia

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Tiina Urv
Rare Disease Clinical Research Network

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Amy Klion, MD
NIAID

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Caitlin Burk, MD
Massachusetts General Hospital for Children

Welcome & Keynote
APFED + Dr. Dominque Pichard, NCATS


EGID: Recent Impactful Studies 

Jonathan Spergel, MD, PhD, Children’s Hospital of Philadelphia


Rare Disease Clinical Research Network: Partnerships Between Patient Advocacy Groups and Researchers to Advance Rare Diseases 
Tiina Urv, Rare Disease Clinical Research Network


Highlights from the Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR)

Dr. Amy Klion, NIAD, NIH


CEGIR Scholar Spotlight
Caitlin Burk, MD, Massachusetts General Hospital for Children


Panel Q&A


Live + Streaming

time iconJuly 12, 2024 10:00 am

Coffee Break + Exhibits

time iconJuly 12, 2024 10:15 am

Session 2 (July 12)

speaker headshot

Tegan Medico, RD
University of Virginia

Nutritional Deficiencies and Bone Health

Tegan Medico, RD, University of Virginia


Pharmaceutical Partner Panel


Live + Streaming

time iconJuly 12, 2024 11:45 am

Lunch Buffet Opens + Exhibitis

time iconJuly 12, 2024 12:00 pm

Session 3: Lunch & Learn (July 12)

speaker headshot

Raquel Durban, MS, RD, CSP, LD/N
Asthma & Allergy Specialists, PA (Charlotte, NC)

Micronutrients and Malnutrition

Raquel Durban, RD

Session supported by Reckitt | Mead Johnson Nutrition.


Live + Streaming


time iconJuly 12, 2024 01:00 pm

Break

time iconJuly 12, 2024 01:10 pm

Session 4 (July 12)

speaker headshot

Emily McGowan, MD, PhD
University of Virginia

speaker headshot

Bryan Sauer, MD
University of Virginia

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Tiffany Kichline, PhD
Children’s National

Management of the EoE Patient: GI and Allergy Perspectives

Emily McGowan, MD, University of Virginia


The Role of the Endoscopist in EoE
Bryan Sauer, MD, University of Virginia


Coping With Chronic Illness + Q&A

Tiffany Kichline, PhD, Children’s National Hospital

time iconJuly 12, 2024 02:30 pm

Break

time iconJuly 12, 2024 02:45 pm

Session 5 (July 12)

speaker headshot

Emily McGowan, MD, PhD
University of Virginia

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Bryan Sauer, MD
University of Virginia

Transition from Peds to Adult Care

Emily McGowan, MD, University of Virginia

Bryan Sauer, MD, University of Virginia


Panel Q&A


Closing remarks

time iconJuly 12, 2024 03:45 pm

Break

time iconJuly 12, 2024 05:30 pm

Dinner + Networking

Dinner will be served buffet style and include allergy-friendly options, with ingredients labeled.

Activities for teens and kids are planned throughout the day. See this flyer.

time icon

Group activity

For onsite attendees who wish to socialize, we will arrange for timed entry passes for the National Air and Space Museum. Attendees are responsible for their own transportation.

time iconJuly 13, 2024 08:00 am

*Note

A watch party will be hosted onsite for attendees wishing to watch these sessions in real-time.

Alternate activity: Attendees may reserve through APFED a timed entry pass for the  National Air and Space Museum. The APFED group will have entry at 11am. Attendees responsible for their own transportation.

time iconJuly 13, 2024 08:00 am

Welcome + EGPA

speaker headshot

Lynn Fussner, MD
The Ohio State University

Welcome

APFED

Long-term Outcomes of EGPA in North America: Findings from the Vasculitis Clinical Research Consortium + Q&A

Dr. Lynn Fussner, Ohio State University Wexner Medical Center

Virtual

time iconJuly 13, 2024 08:30 am

Hypereosinophilic Syndromes (HES): Measuring Severity and Treatment Responses + Q&A

speaker headshot

Gregory Constantine, MD
NIAID

Dr. Gregory Constantine, NIAID, NIH

Virtual

time iconJuly 13, 2024 09:00 am

Eosinophilic Asthma: Update on Pipeline Therapies + Q&A

Virtual

time iconJuly 13, 2024 09:30 am

Break

time iconJuly 13, 2024 09:45 am

Current Progress and Challenges in Eosinophilic Fasciitis + Q&A

speaker headshot

Paneez Khoury, MD
National Institutes of Health

Virtual

time iconJuly 13, 2024 10:15 am

Disability Law and Chronic Disease

speaker headshot

Lisa Gonzalez-Goetz
Gonzalez & Goetz, Attorneys at Law

Lisa Gonzalez-Goetz, Gonzalez & Goetz Attorneys at Law

Virtual

time iconJuly 13, 2024 10:45 am

Break

time iconJuly 13, 2024 11:00 am

APFED Directions in Research & Ways to Accelerate Progress

Virtual

time iconJuly 13, 2024 11:30 am

Wrap Up/Highlights

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Holly Knotowicz, MS, CCC-SLP
Picky Eaters Anonymous

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Ryan Piansky
Patient Advocate

Ryan Pianksy & Holly Knotowicz, Co-hosts of APFED's podcast, Real Talk: Eosinophilic Diseases

Virtual



The agenda is subject to change.

Speakers

Raquel Durban, MS, RD, CSP, LD/N

Asthma & Allergy Specialists, PA (Charlotte, NC)

Holly Knotowicz, MS, CCC-SLP

Picky Eaters Anonymous

Paneez Khoury, MD

National Institutes of Health

Ruchi Gupta, MD, MPH

Northwestern Medicine

Matthew Kowalik, MD

U.S. Food and Drug Administration

Megan Gordon Don

MGD Strategies

Dominique Pichard, MD, MS

NCATS

Jonathan Spergel, MD, PhD

Children's Hospital of Philadelphia

Tiina Urv

Rare Disease Clinical Research Network

Amy Klion, MD

NIAID

Tegan Medico, RD

University of Virginia

Emily McGowan, MD, PhD

University of Virginia

Bryan Sauer, MD

University of Virginia

Tiffany Kichline, PhD

Children’s National

Lynn Fussner, MD

The Ohio State University

Gregory Constantine, MD

NIAID

Lisa Gonzalez-Goetz

Gonzalez & Goetz, Attorneys at Law

Interested in sharing your experiences as a panelist at the conference? Complete this volunteer interest form.

TRAVEL DETAILS

Travel grants

A limited number of travel grants are available to eligible applicants on a first-come, first-serve basis. The application deadline is June 15, 2024.

Hotel

The Bethesdan Hotel
8120 Wisconsin Avenue
Bethesda, MD 20814

Group room rate: $139 per night + applicable taxes. The hotel group rate is available from July 9-July 14, 2024. Rooms must be booked by June 17, 2024. You may make your hotel reservations online. If you call the hotel directly for reservations, mention you are with the APFED conference to get the special rate.

Check-in is at 3 PM and checkout is at 12 PM.

Transportation options

Conference attendees are responsible for their own transportation.

  • Airport. The hotel is approximately 22 miles (~30-minute drive) from Ronald Reagan Washington National Airport and approximately 27 miles (~35-minute drive) from Dulles International Airport. The hotel does NOT provide a shuttle service to or from the airport.
  • Metro. The hotel is a mile from Medical Center Metro Station. A free shuttle is available to and from the metro, or it is a 13 minute walk.

Frequently Asked Questions

If you have questions not answered below, please contact conference@apfed.org.


Please review all applicable state and local COVID-19 travel restrictions, guidance, and resources before traveling to participate onsite at our event. APFED is closely monitoring COVID-19 protocols and may make adjustments as required by local and federal guidelines. If you experience symptoms of COVID, or feel ill, please do not attend the event and expose other attendees who may be more at risk for COVID infection.

Wear what is comfortable for you! The conference rooms may be a little cool, so you may want to bring a sweater.

Children under age 11 are not permitted in the conference ballroom where the main sessions are being held.

All children ages 4-10 must be accompanied at all times by an adult or chaperone who is at least age 15. Select activities will be available for ages 4-10 who register for the conference. Chaperones do not need to register for the conference unless they are planning to attend general sessions and/or access event meals.

Conference programming is not suitable for children under age 4.

We are planning a program with activities that are appropriate for children in middle and high school. These will be clearly listed on the final agenda.

APFED does not provide childcare services, but as a courtesy, can provide information upon request about local childcare services available.

Companions do not need to register for the conference unless they are planning to attend general sessions and/or access event meals.

The conference is open to anyone wishing to learn more about EGIDs. Health care providers, allied health care professionals, and others who are interested in EGIDs will find the sessions beneficial. CME/CEU credits are not offered, however, we will produce a certificate of participation, if requested.

Onsite conference registration includes six (6) meals. All meals will be served buffet style and include allergy-friendly options, with ingredients labeled. Meals will include breakfast, lunch, and dinner on Thursday and Friday.

If companions would like to access event meals, please register them for the conference.

Meals will be served buffet style and include allergy-friendly options, with ingredients labeled.

APFED works with the catering staff to educate them on how to avoid cross-contact and provides ingredient substitution and specialty food recommendations. We work to ensure catering staff labels all ingredients carefully, and that buffet items are separated with designated serving utensils. Please be cautious, read all food labels, and be aware that some foods may contain ingredients that you should avoid.

To provide for conference attendees who have formula or other dietary needs, we will provide a Hospitality Suite for food storage and preparation. The suite includes a refrigerator/freezer, microwave, sink, dish soap, paper towels, and disposable tableware. This room will be staffed and open during posted hours, Thursday-Sunday. Conference attendees can gain access to this suite outside of the posted hours. More information will be provided onsite at check-in. Guest rooms are also equipped with mini refrigerators.

We are also working with the hotel to offer special APFED menus.

Yes! Our conferences are a success thanks to the generosity of our volunteers! We often have tasks leading up to the conference, and onsite at the conference during that weekend. To add your name to our volunteer list, please contact Cara Schmitt at cschmitt@apfed.org. We may not have something to assign you right away, but we will keep your contact information handy. Please note that we cannot waive conference fees for volunteers.

A limited number of travel grants are available on a first-come, first-serve basis to eligible applicants. Learn more and apply.

If you would like to attend onsite but the registration fee poses a hardship, please email conference@apfed.org stating your need and a request for waived conference registration.

Cancellations must be received in writing mail@apfed.org by 5 p.m. ET on July 2, 2024. to receive a full refund of registration fees. After that time, no refunds will be issued. We will ship conference materials and email a link to recorded sessions to paid registrants who are unable to attend. Hotel cancellations must be made separately. Charges may be incurred if reservations are not canceled.

EDUCATION PARTNERS

If you are interested in sponsoring EOS Connection 2024, please contact mjstrobel@apfed.org

Collaborating Education Partner

CEGIR logoChildren's Hospital of Philadelphia logoICAHN schoolChildren's Hospital of Philadelphia logo

Presenting Education Partners

Sanofi logoRegeneron logoRegeneron logo

Platinum Education Partner

AstraZeneca LogoAstraZeneca Logo

Gold Education Partner

AstraZeneca Logo

Silver Education Partner

Ajinomoto Cambrooke
EnteroTrack
GSK

Nutricia
Reckitt | Mead Johnson Nutrition

Hospitality Suite Sponsor

EvoEndo

We hope to see you in Washington, D.C.!